February 1, 2012
ATLANTA - Professor Leslie E. Wolf gave a presentation on Certificates of Confidentiality (a legal tool to protect confidentiality of identifiable sensitive research data) at the Public Responsibility in Medicine and Research (PRIMR) conference on Advancing Ethical Research near Washington, D.C., in December 2011. The annual conference brings together thousands of attendees interested in research ethics, including institutional review board Chairs, administrators, PRIMR members, scholars, and federal and state government employees.
Wolf participated on the presentation entitled, "Certificate of Confidentiality (CoCs): Everything You Wanted to Know But Were Afraid to Ask." Other panelists included Ann Hardy, Dr.PH, the CoC Coordinator for the National Institutes of Health, and Laura Beskow, Ph.D., from Duke University Institute for Genome Sciences & Policy. Beskow and Wolf presented preliminary data from their NIH-funded study, "Use and Understanding of Certificates of Confidentiality."
"We are almost done with our data collection, and it was wonderful to have a chance to share some of our data," Wolf said. "The range of experiences reflected in the audience reinforced our view that we need more discussion about this research tool."
Wolf and her colleagues at Duke University are working on several papers to report their findings. They also have plans for additional presentations to disseminate those findings, including a presentation at a southeast regional conference sponsored by the HHS Office for Human Research Protections in March 2012.
Senior Administrative Coordinator